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Last updated: September 2, 2026

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Registered 501(c)(3) non-profit organization
Federal ID# 83-2659721

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition.

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PO Box 82275
Phoenix, AZ 85071

ashlee.manjon@nr2f1.org

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2022 Report on Rare Disease Genetic Testing
•October 11, 2022
Irish Para-Athlete Diagnosed with BBSOAS
•October 5, 2022
October 2022
•October 1, 2022
Chicago Marathon Fundraiser for NR2F1 Foundation Research
•August 23, 2022
Edith: One Family’s Story with BBSOAS
•August 9, 2022
NR2F1 Foundation Receives Matching Grant
•July 7, 2022
NR2F1 Foundation Welcomes Five New Members to the Board of Directors
•June 8, 2022
June 2022
•June 1, 2022
NR2F1 Scientific Conference for Families Was a Success!
•May 9, 2022
NR2F1 Foundation is a New Member of the Rare Epilepsy Network
•April 8, 2022

February 2022

•February 1, 2022

Holiday Guides for BBSOAS Families and Their Supporters

•November 18, 2021

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