News & updates

Last updated: June 4, 2026

October 2022
•October 1, 2022
Chicago Marathon Fundraiser for NR2F1 Foundation Research
•August 23, 2022
Edith: One Family’s Story with BBSOAS
•August 9, 2022
NR2F1 Foundation Receives Matching Grant
•July 7, 2022
NR2F1 Foundation Welcomes Five New Members to the Board of Directors
•June 8, 2022
June 2022
•June 1, 2022
NR2F1 Scientific Conference for Families Was a Success!
•May 9, 2022
NR2F1 Foundation is a New Member of the Rare Epilepsy Network
•April 8, 2022
February 2022
•February 1, 2022
Holiday Guides for BBSOAS Families and Their Supporters
•November 18, 2021
BBSOAS Grandparent Support Group
•November 18, 2021
Meet Zeb! An exclusive interview
•November 18, 2021

1
...
4
5
6
7
8

1
...
6
7
8

Stay in touch

Connect with us via our social media channels:

youtube
x
facebook
instagram

©2021 NR2F1 Foundation. All Rights Reserved.
Registered 501(c)(3) non-profit organization
Federal ID# 83-2659721

This website is not designed to diagnose, advise or provide medical opinions, treatment or services. It is for general knowledge purposes only. Please consult a licensed medical professional with all questions and concerns regarding a medical condition.

youtube
x
facebook
instagram

Contact us:

NR2F1 Foundation
PO Box 0588
Pflugerville, TX 78691

ashlee.manjon@nr2f1.org

Register a patient
Donate

About us

Who we are
- Organization
- Our strategy
What we do

What is BBSOAS?

Living with BBSOAS

Living with BBSOAS
Register a BBSOAS patient
Support groups

Research

Research
Patient count
Get involved in BBSOAS research
Resources available to researchers
Publications

Support us

Support us
Fundraise
Donate
Volunteer
Store

Contact us

Register a patient
Donate